Jordan has been on a minimum dose of a common stimulant treatment for ADHD for one full week. Jim and I just keep looking at each other shaking our heads in disbelief. The child we see is such a dramatic difference than the child we are accustomed to I can’t even tell you. The positive changes are really remarkable. The side effects are actually very minimal to this point.
I decided to keep a log of all of this for two reasons. One, I want to be able to look back on this for us and for whatever use we will have. Two, once we are comfortable with where we are in this process and how Jordan is doing, I want to be able to share our journey with other moms and dads and caregivers. As we sat in our IEP meeting today, one of the counselors told me I should keep notes so I can share one day with others. I just giggled. She doesn’t know about my compulsive writing of all the details. Ha.
So, as I said, week one has been mostly euphoric for Jim and I. The doc told us we should see results of the meds within around three to five days, but that some effects could be seen right away on day one. So we were hopeful that we’d see some little something on day one. We didn’t expect it, but we said we thought it’d be great if there was something.
I gave him his first dose, told him of all the things I wanted him to pay attention to in his body while he was at school, and I put him on the bus. Just like any other day. HA! Then I emailed the teacher, his primary counselor and anyone else with a pulse at the school and asked them to be watching him closely. “Watch for tics and increased stuttering. Watch for fits and aggression. And for God’s sake please let me know if he looks like his pulse is racing.” Or some version of this.
Jim stayed close to home and worked on some projects. I think he mostly just knew I was going to drive myself nuts all day worrying and wondering. I walked to the bus to meet the kids and waited anxiously for him to do his usual descent from the steps and run my way screaming and wildlike. He sauntered down, strolled my way and gave me a nonchalant “Hey mom, what’s up?”
What the WHAT?!?! Who was this child?
He spent the better part of the last week being himself, but a little more chill and a lot more “I can’t put my finger on it but something/almost everything about that child is different in a very good way.”
We were around 5 weeks worth of homework behind. It’s not that we don’t work on homework with him every night, it’s that it takes so long we just can’t keep up with the class. This week, we did one week’s worth of work each night. Yes. We are now caught up. And he wanted to do homework. He asked to do it. He was proud of his work and he mostly understood what was going on. It honestly felt nothing short of miraculous.
The downside? He can’t sleep as well. At least the first few nights he really couldn’t fall asleep for hours. It took its toll on him. He has been taking Melatonin to help him fall asleep for a few years. We made sure with the doc that this would still be okay and continued as usual. Night one I had to triple his dose to get him anywhere close to falling asleep. No biggie- he wasn’t taking much to start with. It’s still a healthy level. The last few nights, it hasn’t taken as much.
The last few days have had a few changes. He’s still pretty level. The only difference I’m seeing is more of a “sensitivity.” He’s a little crankier than usual. He has had a couple of meltdowns when he doesn’t get his way, which wasn’t happening the first few days of meds. It is pretty typical from before meds though. I almost feel like his body/brain are getting used to the meds and they aren’t working as well. But, he also has a cold and it’s been a very long week of working double time on homework catch-up and his body getting used to this new normal. So I could be wrong. It could be anything. That’s why the doc has asked us to wait a month before re-evaluating his dosage. I’m sure there’ll be plenty of ups and downs.
So far, I’m glad it’s mostly ups! No side effects except the decrease in appetite (we are not concerned about this one!) and the sleep thing. So far, so good.
Awesome! Keeping my fingers crossed that things continue to go well.
I wonder if it’s like getting your first pair of glasses (for those that can relate) – you never even realized you were supposed to be able to see those details! And all of a sudden – you can!
That’s exactly what we’ve said! It’s funny because when the meds wear off in the evening he sometimes says “my head is buzzing just like it used to all the time.” Interesting how aware he is of all of it.
Kind of like getting glass for the first time (if you can relate) – you never knew how clear things are supposed to look!
My TMan has SPD too and we think the getting to sleep at night is more related to that – the noises, the feel of the sheets, etc. So we let him listen to music and have toys in bed to ‘worry’ with or chew on (saves the collars of his shirts). And we’ll let him read with a little booklight – he falls asleep that way alot!
Thanks so much for sharing Kel. When I read this post it was like deja vu for me with Camrynn. Very much the same. Camrynn is so excited to do her homework and is excited about school, I suppose it’s because they now understand and that is exciting to them, unlike before having everything sound like a bunch of jibberish. HUGS to you!
My girlie will actually tell me that she can’t think when her meds have worn off for the day. She asks for them before school if I forget because she likes her days better with than without.
so so so so so happy with this report 🙂
How are things, Kel?
I nominated you for a Liebster this morning. http://wp.me/s271Tm-excited